Current Appeals 2026

A sample of cases we are currently fundraising for

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4-year-old Harper from Bury Saint Edmunds, Suffolk who has a diagnosis of Rhett Syndrome and Global Development Delay.

This is a debilitating disorder which mostly strikes previously healthy little girls just after they have learnt to walk and say a few words.  Loss of motor control sets in and they quickly lose their acquired skills and are left unable to communicate, basically it locks them into bodies that won’t work.  In Harper’s case she is nonverbal and her physical movement is limited and inconsistent. Recommended equipment costs in the region of £7,045.

 

6-year-old Roman from Carnforth in Lancashire. Roman has Floating Harbour Syndrome, a rare genetic disorder characterised by distinctive facial feature, delayed speech development, short stature and skeletal abnormalities.

He has been disabled since birth and lives with his Mum, Dad and three siblings.  His mum tells us that he is a happy, giggly and cheeky young boy who loves swimming, visiting the Zoo and playing outdoors with his brothers and sister.  Recommended equipment costs in the region of £,2974.

 

6-year-old Freddie from Takeley, Essex.

Freddie has Phelan McDermid Syndrome, a rare genetic disorder, which affects his global development, he has severe intellectual disabilities, severe hypertonia affecting his mobility, he is non-verbal and has associated autism. Freddie has been disabled since birth and lives with his Mum, and two brothers.  His mum tells us that he is a happy, cuddly young boy with a good sense of humour especially when watching his favourite shows.  He loves being tickled, going swimming, taken for walks and being with his SEN group. Recommended equipment costs in the region of £9,050.

 

20-year-old Tony from Southport, Merseyside.

Tony has Autism, is non-verbal and has a learning disability.  Tony lives at home with his Mum, Dad and brother who are very supportive.  His brother tells us that he is a happy, friendly young man who loves to socialise Recommended equipment costs in the region of £2,375

 

10-year-old Rose from Dorchester who has a diagnosis of Rett Syndrome, Dystonia, bilateral hip migration (hip dislocation) she is nonverbal and a wheelchair user.

Rett Syndrome is a debilitating disorder which mostly strikes previously healthy little girls just after they have learnt to walk and say a few words.  Loss of motor control sets in and they quickly lose their acquired skills and are left unable to communicate, basically it locks them into bodies that won’t work. Recommended equipment costs in region of £13,100

 

11-year-old Luca from Redditch, Worcestershire.
Luca has a rare and complex congenital condition called Charge Syndrome that impacts various organs with severity differing from person to person.  In Luca’s case he has been left with epilepsy, profound hearing loss and a visual impairment. He lives with his mum, dad and older brother and his mum tells us that he is a happy, loving and determined boy Recommended equipment costs in the region of £7,694.